• Skip to main content
  • Skip to primary sidebar

mrssavageangel

First time mother just trying to figure out where to go from here.

6 weeks on – our ASD journey

27/04/2015 by MrsSavageAngel Leave a Comment

So, it’s been 6 weeks since we had the meeting where it was agreed my gorgeous, floppy haired baby was just a little different from the other children. 6 weeks since I wept on my husband in a hospital corridor. 6 weeks since we felt one weight lifted and another replace it. 6 weeks since Oscar was diagnosed as “autistic”.

We’re getting on pretty well I think. Oscar’s speech gets better every week. Every day brings new words, new phrases, something else to amaze and baffle me. Three weeks ago, out of the blue, he started to say “Thank You” whenever you give him something or do something for him. Sometimes it’s even “Thank you mom mom”. He’ll even point it out if you don’t say ‘thank you’ when someone gives something to you! He can’t speak but suddenly he’s the politeness police? What the heck? And I say ‘heck’ because that’s another things he’s started doing, repeating the words you really don’t want him too! Like “Oh My God!”. And “Balls!” And the “f” word you never want them to say in front of their preschool teacher! It’s not that I swear all the time, but the fact that I didn’t have to worry about him repeating back what I said, meant I didn’t think to moderate my language ages ago. Like my friends did. Ahh well! At least it means he’s taking it in I guess? Sigh!

His behaviour is getting better and better too. His eye contact has gone from shaky to amazing in just four small months. He approaches other children now, be it friends in the garden, those at nursery or strangers in the park. He’s learnt a simple “Hello” opens all sorts of doors, particularly games of chase. There’s still nothing Oscar loves more than running around, but he’s now allowing other children to get in on the act. Even more amazingly he’s started to play games initiated by other children. Slowly slowly catchy monkey as they say, but last week he was approached at preschool, by a little girl, asked to play a game and he did. I think his TA was as shocked as I was when she told me.

Don’t get me wrong he still gets upset about things. Frustration is clear on his beautiful little face when he can’t get what he wants or do what he wants. But now he looks at me while he cries. And his bottom lip wobbles. He rarely hits himself and the anger goes as quickly as it came. These are tantrums of a toddler. We rarely see the blind panic of a melt down that can take over a hour to calm any more. But when we do, we’re coping with them better. Staying calmer, giving him that safe place he needs. We’re also a lot better at avoiding situations that could push him to that place beyond. We try not to make a big deal about it and that’s helping I think. For example, some birthday parties work for us, others (the sit down and watch kind) don’t. Yet. Give him time.

Yeah all in all, he’s progressing brilliantly. And yet as he gets easier, the stress of him is replaced by the stress of what his diagnosis brings with it. A hundred forms to fill in, a thousand things to read, new people every week, a new language (mainly made up of acronyms), advice, process, meetings. Getting everything set up to support my little guy, comes at a human cost. Me. I tell you what, it’s lucky I was an Account Manager for five years. Little else could have prepared me so well to deal with so many agencies all at once. Plate spinner extrodinaire that’s me. Only this time I’m not getting paid for it. But on the plus side neither do I have to work in Hoxton Square with all the hipsters, so you know, swings and roundabouts 😉 .

I’m not trying to brag here, but I feel like I need to keep some kind of record of the journey, of his milestones that would mean so little to anyone else. Heck ( 😉 ) who am I kidding, yes I am bragging. I’m so ridiculously proud of my baby and how he’s coming on that it’s worth all the forms and all the meetings and all the stress.

Last week someone told me what a polite little boy I had, after he said Hello, Please, Thank You and Goodbye, all perfectly and all in the right place. I didn’t cry, because seeing me sad upsets him, but I was crying inside.

Crying with happiness.

My playful...
My playful…
...curious...
…curious…
...happy...
…happy…
...handsome boy.
…handsome little boy.

 

Share the Joy linky at bodfortea.co.uk

Filed Under: Autism, Children, Family Tagged With: asd, Autism, Autistic, Autistic Spectrum Disorder, Baby, childhood, children, Development, Family, health, journey, melt down, Motherhood, mummy, Oscar, Play, Pre-school, speech, speech delay, tantrum, Toddler, update

Reader Interactions

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

Primary Sidebar

Follow Me

  • Facebook

Recent Posts

  • North Hayne Farm Cottages – our experiences as an SEND Family
  • One gift – an update…..
  • One gift….
  • Key Stage 2 and the Autism Mama
  • Amsterdam, the perfect city break with children

Instagram

Totally petitioning to move Bonfire night to June. Totally petitioning to move Bonfire night to June. It’s not so dark you lose your family, it’s way warmer and the sky just looks more dramatic. Much more fun all round.
Jubilee Beacon Fireworks. Jubilee Beacon Fireworks.
What an amazing day! The little sister who came in What an amazing day! The little sister who came into our lives when she was a sweet little ten year old, is now a beautiful, strong wife and mother. We couldn’t have been any prouder to share her day with her. Oh yeah and James was there too 😜 Only kidding we love you guys so much! #family #wedding
All the chocolate, all the good food. Happy Easter All the chocolate, all the good food. Happy Easter, Passover or Ramadan. Hope you’re spending today with your people. 💐🐰🌱 #spring #celebrate
New favourite cousin photo! #thuglife #jessandosca New favourite cousin photo! #thuglife #jessandoscar
Oscar’s party was a roaring success. The cousins Oscar’s party was a roaring success. The cousins all came and played together like they were best of friends, the Minecraft themed food was devoured, the castle was bounced to within an inch of its life, the grown ups chatted and most of all the boy had the best day! And now I’m so exhausted I’m off to bed. Thank you to the family (and chosen family) who helped make it such a special day for our special little guy. #whenoscarturnedten #happybirthday #familypartiesarethebest
Ten years old. Where has that decade gone? He’s Ten years old. Where has that decade gone? He’s ten years old. I’m ten years older. Sometimes it feels like we’re growing up together! Happy birthday beautiful boy. And Happy Birthing Day to me. 🥰
It’s that time of year again when I lay all his It’s that time of year again when I lay all his presents out and say I’m ready for him to be another year older and then quip that I am NEVER ready for him to be another year older. But 10 man? I don’t know, it feels so… significant. Double digits, a decade, it somehow feels different from all the other birthdays. I can’t quite believe it tbh. Anyway as he’s having his birthday here (tomorrow) but his party in Plymouth next Saturday it has been decreed it’s his birthday all week. And what with the grand age he’s turning, I think that sounds perfectly appropriate.
Breakfast in bed (toast and a makeshift cloche - w Breakfast in bed (toast and a makeshift cloche - we fancy!) and three cards and a sunflower he planted from seed at school 😱! Now off out for lunch. Very much a Happy Mothers Day to me! And to all the mamas I know. May you be treated like Kweens today!
Load More... Follow on Instagram

Archives

Categories

Copyright © 2023 · Lifestyle Pro on Genesis Framework · WordPress · Log in