Worth a thousand words……

Back in May I wrote a very personal post about mental health. About how receiving a life long diagnosis such as Autism for your child is shattering and how little support parents are given to come to terms with what it means to them, as a family, as parents and as people. It was an important post to write. I was, and still am, incredibly proud of it.

Any who shortly after publishing it on the blog I was contacted by Spectrum Inspired; an American based not for profit, whose mission is to:

“give [ASD] families a platform to voice their struggles, celebrate their victories and share their story; all the while, removing the stigma and stereotypes of what is thought to be representative of Autism and show the world just how broad and beautiful the spectrum is.”

I’d been following Spectrum Inspired (via their blog and Instagram account) for some time, and was so flattered to hear that they really appreciated what I’d written. And I was bursting with pride when they asked if they could use my post as an article for the next edition of their printed magazine 😱.

I agreed immediately, just happy that my thoughts and support might reach more Autism families across the globe. I then had a completely unexpected email back from Melissa, asking me if we would like a session with a professional photographer, to provide some images to go with the article. She explained they had a partner photographer not far from us and would be happy to arrange a session, with all images gifted to us at the end. Well! Who could say no to an offer like that?

We prepared Oscar for the session with Redhill based Amanda Dalby, by showing him the very useful social story that Spectrum Inspired provided. The idea was to capture our lives, as they are. It was suggested we be natural, relaxed and just ignore the camera. I can’t tell you how difficult that was for me on the day! But after an initial reticence from the boy (“NO not me, photograph my family“), he turned out to be a pro!

© Amanda Jane Dalby 2017

The lovely Amanda came to the house early one Saturday evening and Oscar was keen to show her all his toys and especially his new Lego train.

© Amanda Jane Dalby 2017

He then quite randomly told us he wanted to bake a cake! Of course he did !

© Amanda Jane Dalby 2017

After an hour or so we decided that, as the evening was so beautiful, we’d go and see if we could get some good shots up at a local National Trust beauty spot, The Devil’s Punchbowl. And boy am I glad we did!

© Amanda Jane Dalby 2017

© Amanda Jane Dalby 2017

© Amanda Jane Dalby 2017

We had the most amazing hour running here, there and everywhere. Basically, following a very happy little boy. Going where he wanted, playing his games and dancing to his tune. I tell you, Amanda certainly earnt every shot she got that day!

A few weeks ago the magazine was released. And my copy arrived today. There are my words in print. And there’s Oscar. And I can’t tell you how proud I am of both of us.

 

Thank you to Melissa, Amanda and everyone at Spectrum Inspired for such a beautiful gift. For seeing me, for seeing us and for trying to ensure the world sees us too. And not just my little family, but the entire Autism community.

After all what’s the point of awareness, if we are the only ones who are aware?

© Amanda Jane Dalby 2017

 

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