The consensus across the sentiments I see expressed on social media, is that parents have spent a lot of energy this summer, relishing the time they have with their children, and working really hard to make it as special as they can, so that they never look back and say they wasted these young days. That when these days are over they will miss the chaos and the muddy knees and the laughing and trips to the beach. And I don’t doubt it. But while you may have adored the summer holidays, being with your children and making wonderful memories, for me eight weeks without barely a break has been too long.
And that makes me insanely jealous.
Our summer holidays started well. Oscar began happily enough. I loved not having to get up and dressed in time to walk the miles a day to take him to preschool. It was enough. But within a few weeks the iPad had taken over our lives and try as I might to set up activities at home, mostly I felt like I was whistling in the wind. I had to take him out of the house, to the park, or to the shops on errands, just in order to get him away from the screen. Cause when he falls into the vortex that is Youtube Kids, I may as well not exist.
It’s my fault of course. I gave him the damn thing in the first place. Downloaded the stupid app in an attempt to stop him googling pictures of trains, which would lead to videos of trains on real Youtube, which lead to videos that weren’t wholly (or sometime at all) appropriate. I can’t blame anyone but myself.
But unlike last year where he spent a large portion of the summer hols watching Team Umizoomi on TV, which seemed to improve his language no end, this summer, his language seems to have stalled. And in the last few weeks the echolalia is back; repeating scenes from YouTube videos over and over. He hasn’t done that for so long. At least he now brings me into his script, teaching me what to say and when. For example:
Oscar comes over to Mummy: “Mummy (say) Oscar, what you talking about?”
Mummy: What are you talking about Oscar?
Oscar: It’s a ghghghghost train drive here last night
Oscar: Last night (something I cant quite make out) made my wheels wobble
Mummy: You are a silly engine, I’m not afraid of ghosts
Over. And Over. And Over.
A friend with older autistic children has suggested this could be his attempt to make order out of the chaos. That for him, not going regularly to preschool (his established routine) is starting to make him anxious. It could be. I thought we were doing OK, but his behaviour has started to suggest he’s not doing quite so great. No full on melt downs yet, but lots of resistance to doing anything. And an obsession with anything Thomas related. He’s always been a fan but this summer he’s taken that to another level. Again, I’m assuming it’s familiarity in an unfamiliar routine. An attempt to make sense of our world.
We have had a few nice days. We went on our Day out with Thomas, he’s been to Challengers twice (which he loved – I hear. He never tells me of course), we’ve had the paddling pool in the garden and sojourns to the swings. But there have been no day trips out out. Because I don’t drive if it’s not on a train or a bus I can’t do it. But even if it was on a train line, the thought of taking him ‘out out’ alone scares me. We have been to our local children’s centre a few times this summer, which has been mostly lovely (although it’s hardly LegoLand right?!) Anyway one day he had a good time but started to get stressed towards the end and I knew it was time to go. We went to the toilet before we left, when he started to cry and fight me. I had a banging headache that day and I ended up sat on the floor of the loos, trying to hold the tears in, just completely unsure of how I was literally going to get him home. Because everywhere we go is under my own steam and I seriously wasn’t sure I had any left.
I did get him home (he calmed down as soon as we left), but that’s how I feel this summer has left us both. With little resources left. Somewhat frayed at the edges.
I’m not sure this is the best frame of mind to start school is it? Surely it would be better to be rested and raring to go. But I’m pretty sure that’s not how he feels. At a guess I’d say stressed, bored, lonely even. Probably sick of my face. I’m hoping our short break to Moonfleet Manor next week is a good idea. He’ll have so much to do and lots of new things to play with. I doubt he’ll remember our last visit so I’m making him a visual reminder. But I am hopeful that we’ll all come back a bit more…. if not rested, then more ourselves.
Because this summer has left me like my Woody and Florence AUTISMMAMA bracelet.
Worn thin and ready to break.