Family

The time has come…..

14/03/2017 by MrsSavageAngel Leave a Comment

I’m a sociable person (and by sociable I don’t mean a drinker I promise!). Some people find energy and focus in solitude. And I find mine in other people. I need other people. I guess I’ve always known that on some level, but it’s only recently occurred to me just how much. I’m guessing it might explain why being at home alone without Oscar has been so ridiculously hard for me. And may be why I seem to write better, more from the heart, when I’m with or have been with other people.

Admitting the truth of my needs has been longer coming than you might think. I seriously can’t remember how things were before Oscar came along, but I know since then, my needs have been totally subsumed. By him, by Autism, by getting through today, by planning for tomorrow. I don’t think that’s unusual. Parents, and particularly mothers, are often consumed by their children. Thing is, I didn’t think I would ever lose myself inside motherhood, but I have.

So admitting I have a NEED for human interaction; that a lack of it was depleting my reserves was something of a really important epiphany. And it made me look at areas of my life I hadn’t considered before. The size of our house has always bothered me. We bought it, a two bedroom cottage, before we knew Oscar was on the way. We bought it thinking we had a decent size spare room and with thoughts of extending the ground floor. The spare room became a nursery within a year and the extension turned out to be more expensive (due to lack of access) than it was worth.

I could never understand why this bothered me so much. We have a wonderful garden and yes the house needs a bit of tlc (what period property doesnt?) but it does have charm. So I started to look objectively. To ask why having no spare room sat so heavy in my heart. Why having nowhere for a dining table made me so sad. I’m not a materialistic person. Yes I love the odd new gadget here and there, but I don’t measure my life’s worth by the ‘things’ we have. So I asked what would I do with all this extra room, what would it mean to me, to our life, to MY life? And the answers astonished me.

I want a spare room so friends and family can come and stay with us. I want a dining area so friends can come to dinner. I want a larger lounge so we can seat more visitors. Every reason I had for wanting more space was not about me. It was about other people. And then I realised it wasn’t about other people at all. It was speaking to my need to have other people in my life.

The house we have might fulfil our basic need for shelter and security, but I’ve come to realise our beautiful house no longer meets MY needs, on a very fundamental level.

And that’s quite a sad realisation. This was the first house we ever bought. It was Oscar’s first ever home. And it’s hard to accept you no longer fit into a large part of your life. Or more specifically a large part of your life doesn’t fit YOU anymore. It will always hold a very very special place in our family history. The memories we’ve created here will always be with us.

But the time has come.

Even though it means having to deal with estate agents and legal processes and finance and all things that are liable to send my anxiety levels sky high. Even despite all that it entails.

The time has come to move.

I’ll let you know how it goes…..

How I met Father Christmas – and why I wouldn’t do the same thing for my son

25/11/2016 by MrsSavageAngel Leave a Comment

When I was a kid, going to see Father Christmas (because back then he really was just Father Christmas. I’m a bit more interchangeable with what we call him now. Father Christmas, Santa, I don’t really mind, Oscar knows they’re one and the same) was one of the highlights of my year. I can’t tell you how magical it was for me and that was due, in no small part, to the Father Christmas we used to go and see.

If you grew up in or around Coventry in the late 70s/early 80s, I’m guessing you also went to see Father Christmas at the Co-Op, a department store in the city centre. I say that simply because I don’t remember ever going to see him anywhere else. And to be honest I never wanted to go anywhere else. I went with my mum and Nanna (and probably my brother although I don’t remember him being there) and it was almost more exciting than Christmas Day itself. Almost 😉 !

It was super special to me and thousands of others over the years, because you see they didn’t just have a Santa in a chair that you queued up to see, oh no! Before you went anywhere near a guy in a red velvet suit you had to get the sleigh to Lapland. Because you see we weren’t going to see any old Santa in a department store. No, we were travelling to Lapland to see the actual man himself.

My memory of 35(ish) years ago, is some what hazy, but I clearly remember that the experience began with queuing up and being taken through a door into a room. The room was small and dark and lined with benches all facing a wall, in front of which where two (models) reindeer! Once everyone was seated, music and jingle bells would start, as would a projection of moving snow in front of the reindeer. It looked as though they were actually ‘dashing through the snow’. Suddenly we weren’t in just a room, we on a sleigh and we were off to see Father Christmas! My memory also wants to say that the seats moved, tilting as we dashed through the snow, but I honestly can’t see how that could have been and maybe I’m imagining it. Did it?

The most jaw dropping bit of the whole experience for me, was when we ‘arrived. The ‘sleigh’ would stop and we would be shown out of the room, but, and this is the best bit, everything outside the room was different to when we came in. We were in Lapland. As a three and four year old that blew my tiny mind. It was the most exciting part of the whole deal. We had actually traveled to the North Pole! While I’m still not 100% sure how it was accomplished, I’m pretty sure now, that we were just taken out of a different door than we’d come in. But however they achieved it, at the time and for far too many years after I believed we’d actually traveled somewhere. It was truly magical.

After all that seeing Father Christmas was just the icing on the cake. I sat on his lap and got my present wrapped in garish 70’s paper. I smiled for the photo.

1980s child with father christmas — Seeing Father Christmas at the Co-Op, Coventry, circa 1981. Note the reins. Oscar truly is his mothers son! Also who knew Father Christmas wore grey suit trousers under his coat?

Well I did eventually. The first year I was taken I was just one and having none of it. And quite right too. Now I have children I know how frightening that must have been to a one year old. But it’s still gone down in family lore that I wouldn’t sit on Father Christmas’s lap the first time I met him and my mum had to sit in his chair with me instead.

child crying meeting santa — My first visit with Santa circa 1979. I was just one. I look pretty terrified of the man in red. I’m still not a big fan of beards now 😉

Because the whole seeing Santa thing can be overwhelming. The experience I had as a child was so sensorially exclusive. There’s no way I could ask Oscar to do any of what I enjoyed (eventually) as a child. Because we are/were very different children. We have in fact only taken Oscar to see Santa once in his life, when he was 5 months old and it really was more for us as parents than for him.

425669_10152014401300616_324485287_n — Oscar meets Santa in 2012. He wasn’t fooled by the beard. He tried to pull it off minutes after this!

The following year he was already struggling with things such as waiting. And following his Autism diagnosis we stopped even considering putting him through an experience we were pretty sure he wouldn’t understand or appreciate and could cause him great anxiety. Like I said, very different children.

However, as he grows, his capability and understanding grows with him. He’s much more aware this year of who Santa/Father Christmas is and this year for the first time in years we actually feel we want to give him the opportunity to see Santa; for him, rather than for us. It is true that some places are becoming more aware of inclusivity or even just providing a range of experiences to meet all needs when it comes to big events, such as Christmas. Last year I even read about some shopping centres (unfortunately not near us) running Autism friendly Santa grotto experiences, which is fab. All children should be given the opportunity to meet the big guy if they want to. However we have plumped for a very different kind of meeting all together this year, one that hopefully speaks to Oscar’s interests and needs.

Following our fabulous day out on the Watercress Line in the summer we have decided to take him on the Santa Special where you “travel in a festive traditional train carriage, while Santa and his jolly helpers visit you in your seat with a special gift.” I have high hopes for this as it combines two of Oscar’s favourite things in the world; trains and receiving presents! It also removes any need to queue, something Oscar finds so hard to do. It also gives us our own space and we can take toys and snacks to help him if needs be.

I honestly can’t wait. But wait I will have to, because I’ve booked it for Christmas Eve. This may sound bonkers to some of you, but Oscar struggles with the concept of time. My concern was if we saw Santa too soon, he might want his presents NOW, and not cope with having to wait weeks to get them. I could be wrong of course, but that’s AutismMamas for you. Always trying to second guess, always two steps ahead!

Anyway, Christmas Eve it is. Who knows it might work out perfectly and bingo, we’ll have ourselves a new Christmas tradition. I mean it’s not as amazing as actually travelling to Lapland, like I did.

But I think it could still be pretty magical 😉 .

Friends, fish and fire – our first school Half Term

03/11/2016 by MrsSavageAngel Leave a Comment

Half term has been and gone and while Oscar definitely showed me that he was missing the routine of school, he did really well and we had lots of fun.

Cousin love

We started the holiday with a lush visit from Ben’s sister and her two little ones. I love my niece and nephew so much and watching Oscar play with them (sometimes happily, sometimes grumpily!) just makes me so happy. We had such a lovely time, I was even willing to forgive that they both asked over the course of two days “Auntie Lisa why is your house so tiny”. Out of the mouths of babes I guess!

We took them to our favourite hangouts while they were here, including Applegarth Farm and Dylan’s Milk Barn. Rachel said she felt like she knew Dylan’s already having heard me talk about it so often. I might start charge Ben, the owner a PR fee!

The Neicephews discover Dylan's — The Neicephews discover Dylan’s

Home Start

Once they’d returned home we had a lovely visit from our old Home Start Volunteer. Despite being released from the programme that helps preschool families, our wonderful Rent a Gran (as I lovingly call her), was worried about how Oscar had got on since starting school. It was so touching to know she’d been thinking of us. She popped over for a catch up and bought me such a lovely begonia. It reminded me of the one’s my own Nanna would always have in the house when I was small.

National Marine Aquarium Plymouth

We finished the week with a short trip down to Plymouth to see some friends. Oscar loved having a sleep over with their daughter and they played so nicely (he kept asking for her once we left). Our friends couldn’t get over the improvement in Oscar’s language. When you hear it every day it’s hard to remember just how much has changed in such a short space of time.

We couldn’t go all that way without a trip to Oscar’s absolute favourite – The National Marine Aquarium. You might remember we went at Easter and I kid you not it’s the only place Oscar has ever asked to go back to. Again and again! Periodically since April he’s just asked “We go Quarium?”. It’s been heartbreakingly cute. And so we planned to take him for the last hour when we arrived on Friday, as we did last time. And like last time we didn’t have to queue and we kind of tailed the majority of the other visitors. Or rather we would have, had Oscar not just been sat in a car for four hours. He went in at top speed and raced around glancing at the tanks as he flew past. When we got to the end he announced he needed the loo. So we found one near the beginning and when he came out, we just started the Aquarium all over again, this time much slower. It worked a treat!

The main tank at the National Marine Aquarium. Stunning

father and son at aquarium — “Look daddy it’s broken!” Oscar was fascinated by the environments created at the aquarium

boy at aqaurium — Oscar loved getting up close and personal with the biggest fish tank he’s ever seen!

The staff at the NMA were just as lovely as always. I realised half way down to Devon that I’d forgotten our DLA and Carer’s letters to prove we were entitled to concession tickets. Just in case, I tweeted them to ask if there was any other way of getting the concession price. I was told to ask for Olly at the desk. When we arrived we did just that and he told the front of house to waive our fee. It was just so kind and much appreciated. Thank you Olly!

Out of interest I also saw this while we were going round. I’m gutted we will miss it again, but if you know anyone who may appreciate a quieter session at the National Marine Aquarium then the next one is on 16th November. Find out more here.

Bonfire

We finished our stay with a family bonfire at our friend’s dad’s beautiful cottage just outside Plymouth. We had an amazing bonfire, a bbq and a chance to catch up with friends we’ve known for years. And I mean years. I met our hosts sister on her first day at secondary school. 26 years ago! It was so lovely to see everyone and to watch our children get to know each other. Oscar was nervous of the dogs to begin with, but once he started playing with the children he relaxed and stopped noticing them. He had so much fun. And it was a night of firsts for him too. His first sparkler, that he loved and was very good with (with 100% supervision) and his first McDonalds, that he didn’t like at all. Fair enough. Thank you to the Pringle clan for making us so welcome. As always.

Oscar's first sparkler. I held his hand until he said, "no mummy I do it" ! — Oscar’s first sparkler. I held his hand until he said, “no mummy I do it”

Back to school

I was worried how the holidays, the first break from school since he started in September, would go. And I know I definitely saw some signs that he was missing it, but really, he coped amazingly well, showing off his improved language and social skills. And despite being ill this week (impetigo apparently, no I didn’t know what it was either!) he’s had a great return to school.

And today he had his first fully dry day without accidents since he started.

This year just keeps getting better for him!

SEN Family on Holiday at Moonfleet Manor

06/10/2016 by MrsSavageAngel Leave a Comment

When we decided to go back to Moonfleet Manor this September, I was not only really looking forward to it (we had such a great time when we went two years ago) but I was super interested to see how the hotel would cope with us as an SEN family. Could they accommodate the needs Oscar, as an autistic child has, and give us as parents (and adults) a decent break too?

Preparation

I started to get a feeling that they just might, even before we arrived. Weeks before our stay I phoned the hotel to book Oscar into the onsite creche, sessions of which are included in the room price. I spoke to the Ofsted registered creche manager and explained about Oscar’s Autism and asked whether they would be able to cope if he came to spend time with them. She couldn’t have been any clearer that he would be welcomed with open arms, and explained they regularly have guests with disabilities including those on the Spectrum. Without prompting she asked whether we would like them to assign a member of creche staff to be Oscar’s one to one during his sessions. I was blown away by this as it was exactly what he needed, but was something I’d never thought they’d be able to provide. They continued to outdo themselves when, several days later, they emailed me a picture of the staff member who would be his one to one, so I could prepare Oscar beforehand. Again, above and beyond and highly appreciated.

I tried to prepare Oscar as best I could for the upcoming holiday, by talking about the hotel, showing him videos from Moonfleet’s website and making him a visual board which we stuck to the lounge door for a week beforehand. He looked at it every time he went past and was soon telling me he needed to go swimming. By the time we left he was pretty excited I think.

Oscar's Moonfleet Manor Holiday visual board — Oscar’s Moonfleet Manor Holiday visual board

The journey to Weymouth, in Dorset was easy (and made all the easier by Thomas the Tank Engine films on the iPad!). We arrived too early to get access to our room, but the staff happily checked us in and gave us our room name so we could order lunch. Oscar had a little wander round the gorgeous hotel lounges, looking at the vintage pieces on the walls, before finding the garden. We thought he’d be drawn to the trampoline, having been sat in the car for two hours, and he might have been had he not seen the giant sandpit. He happily installed himself and his trains in the sand, leaving us to have a coffee and a biscuit, bought out to us in the garden. Aaaaaand relax. The fact that the sandpit was in a gated enclosure was a nice touch and the huge garden itself was fairly secure, although this did rely heavily on other guests closing the gate to the car park, which not all did.

boy in sandpit — Oscar adored the giant sand pit at Moonfleet Manor

The sandpit at Moonfleet Manor was in a gated enclosure, great for small children or those who need a little more secuirty — The sandpit at Moonfleet Manor was in a gated enclosure, great for small children or those who need a little more security. Plus, look at that view!

Coffee cup — When someone brings you coffee and a cookie almost as soon as you arrive, you know its going to be a good holiday!

Creche

At 3pm, we took him to his first creche session. We had booked him in for four sessions over the two days so were hopeful that would give us (and particularly me 😉 ) some time and space to be alone. We were introduced to his one to one, Tara, who we chatted to about Oscar’s likes and dislikes etc. She asked some really relevant questions that kind of took me aback a little, until she told me she was also the mother of a SEN child herself and spoke Makaton at home. As any SEN parent knows, our children take a special kind of patience and knowing Tara had real life experience of this gave me even more confidence in his time at the creche. As I expected he would, Oscar ran straight in, excited to play with all the new toys (including of course the trains and track) and we were free for two hours.

Room

We checked into our room without Oscar, which allowed us both to lay out his things ready for him (making the unfamiliar a bit more friendly) but also to look round our accommodation. I was thrilled with the room. We had a Deluxe Two Bed Family room and couldn’t get over the space this afforded the three of us. As well as our huge (ridiculously comfy) bed and the generously proportioned bathroom (with bath, shower and double sinks), the room also had two twin beds, which were cleverly separated from the main room, giving the feel of two rooms. And each room had its own window, meaning that although this was a large space it didn’t feel too dark. Plus, what a view!

Double sinks! As the room could sleep a family of up to five I'm sure this detail would be most appreciated. — Double sinks! As the room could sleep a family of up to five I’m sure this detail would be most appreciated.

Moonfleet Fleet — View from our room at Moonfleet Manor. Across the gardens and down to the Fleet.

This was a wonderful and unexpected touch as we were worried how Oscar would cope with sleeping in the same room as us. As it happened he had a generously proportioned ‘room’ all to himself, with twin beds, it’s own storage and own TV. This room could have slept up to three, with a camping style bed being included at the foot of the twin beds. This had been made up despite us not needing it, and blow me, if Oscar didn’t insist on sleeping in it (very well I might add!) both nights! Funny child 😉

Oscar’s room was separated from us, which gave him his own space and a choice of beds!

When we bought Oscar up to the room after his creche session (and our relaxed Cream Tea in the lounge in our favourite chairs in the bay window!) he ran around giggling, jumping on the beds and then proceeded to get his trains out and play with them on the coffee table in the living room area. It was so nice to have that extra room and it gave him the space to regulate himself in peace after busy sessions in the creche/pool/garden etc.

We booked our cream tea before we arrived. Happiness in a scone. PS this jam cream combo is THE only way ;) — We booked our cream tea before we arrived. Happiness in a scone. PS this jam cream combo is THE only way 😉

Food

One of the things we loved about Moonfleet last time was their ability to feed all age ranges so thoughtfully. Despite Oscar being a rather anxious eater, we knew there would probably be a few things he would eat on the menu and we were right. However, we hadn’t considered how difficult the dining room might be for him. The first night he managed it, just about. Although he didn’t get upset, there was just waaaaay too much going on for him to concentrate on eating. Or sitting. Add to that a new(ish) food and it just all got a bit much and we left before things spiralled. The next night, after a busy day in the creche and the pool, we just figured he’d be more comfortable and eat more if we ordered room service. It couldn’t have been easier and they bought up his naan bread pizza and fries with the requested squash in minutes. It was a genius plan and I was just so grateful that it’s a service the hotel are happy to provide. It made such a difference and he ate the whole meal. It was also another time we were so grateful for the extra space the room provided.

He loved the naan bread pizza at Moonfleet Manor, but struggled with the dining room

Deciding to order him room service was an inspired plan. Oscar was thrilled it arrived with a 'hat'. I told him not to get used to it ;) — Deciding to order him room service was an inspired plan. Oscar was thrilled when it arrived with a ‘hat’. I told him not to get used to it 😉

He ate much more in our room and was much more comfortable.

Breakfast was equally good with a menu to chose from or a running buffet of cooked breakfast items, along with the usual cereals, pastries etc. Again Oscar struggled a little with the dining room, although being tempted with Nutella on toast and the pastry basket was enough to get him to eat something and give us time to do the same. However, not before he insisted 8am was time for the sand pit! And who were we to argue? It was after all his holiday too!

There were healthyier options thank pain au chocolat and chocolate muffins on offer for breakfast at Moonfleet Manor, but I wasnt going to argue. It was his holiday too after all! — There were healthier options than pain au chocolat and chocolate muffins on offer for breakfast at Moonfleet Manor, but I wasn’t going to argue. It was his holiday too after all!

Baby Listening

The excellent food continued into the evening and due Moonfleet Manor’s wonderful baby listening service, we were able to thoroughly enjoy it! Each night we kept Oscar’s bedtime routine the same as home, meaning when he got into this new bed he was ready for sleep. We called down to the reception to turn the baby listening service on and left him, with fingers crossed. And bless him if he wasn’t out like a light both nights! It was just so nice to have that time, sans child, to eat a delicious meal together, all the while knowing he was safe and monitored. We did see the receptionist come and find several families over the course of the two evenings. The majority of our fellow guests had young toddlers and babies, so that didn’t surprise me, but it did comfort me to know someone was actually listening!

Evenings

Our evenings, just the two of us, were wonderful. So relaxed and so much fun. It really did feel like ‘going out’ for dinner both nights. We dressed up, although you totally didn’t need to. We started the evening with drinks and nibbles in the lounge, where we were bought the menu to order from. We were then called to our table when our food was imminent. And the food itself was delicious. We played a game of who won each course both nights and disagreed over the outcome of most, as everything was so good. Plus Ben had goats cheese and who can ever win with goats cheese!

Wine and nibbles before dinner. I can highly recommend the the Preignes le Vieux Viognier — Wine and nibbles before dinner. I can highly recommend a bottle of the the Preignes le Vieux Viognier!

Although Ben was adamant his choice was the winner. He was wrong though!

Spa

Our opportunity to relax while Oscar was looked after in the creche continued in the onsite spa. Both Ben and I booked treatments for our second day. I had a body wrap and a pedicure and Ben a facial and massage. The fact that the hotel has a fully functioning spa onsite, would be a draw for any stressed out parent. We made our appointments at opposite ends of the day so neither one of us would be left to look after the boy alone.

Heated bootees in the Moonfleet Manor Spa! Stylish!

While Ben went to have his treatments in the afternoon I had a nap! A nap! Imagine that!

Pool

As it happened my nap was disturbed half way through as Oscar had managed to wet every pair of trousers I had taken down to the creche for him (toilet training is a new and ongoing process for us). I took some more down to him, however once he saw me it became apparent he didn’t want to stay. I didn’t mind and chose instead to take him to the pool next door.

Moonfleet Manor has a three small pools onsite, a baby pool, a small learning pool and a larger swimming pool. While it may not be as fancy looking as some other spa hotel pools I’ve seen, it certainly worked for us.

Having not been swimming for a long time I wasn’t sure how Oscar would react. I needn’t have worried. He was most interested in the swimming lessons taking place in the learning pool (all babies or young children) and happily snaffled a couple of pool noodles to play with from the teacher. I still don’t know where he found a pair of Peppa Pig armbands, but find them he did. Once he put them on there was literally no stopping him. We were in the pool for two hours and in the end I had to practically drag him out, he was having so much fun. So much in fact that we decided not to put him into the creche the morning of our departure and instead both took him to the pool. He just loved being in the water so much! I am definitely going to have to look into one to one swimming lessons for him.

As the pool wasn’t too large I could relax about him getting lost and it never got busy enough to be too much for him. The only thing that could have been better for me were the changing rooms. The facilities were unisex and yet there were very few cubicles. On days busy with guests or swimming students this would mean you could end up changing in front of the opposite sex. Not ideal to say the least. However, there were decent baby changing facilities, free lockers, towels and toilets within the changing rooms. I would recommend changing into your swimwear in your room, meaning you only have to use the facilities at one end of your swim. Unless, unlike me, you have no body image issues!

The Verandah

One of Moonfleet Manor’s other assets is it’s enormous, and I mean enormous, play barn The Verandah. As we were only there for two days, we barely had time to fit it in, but did pop in for a quick run around before departing the hotel. Anything to let him burn off a bit of energy before getting in the car! He LOVED it, just as much as last time, and we actually ended up having this giant space, filled with soft play, trampolines, climbing equipment, football pitch, piano, ride on toys and air hockey tables to ourselves!

Oscar and daddy having a go at the highrope — Oscar and daddy having a go at the slackline

The boy's first game of air hockey. He thought it was hilarious every time he let a goal in! — The boy’s first game of air hockey. He thought it was hilarious every time he let a goal in!

Again the room was fairly secure and was a great place for Oscar to get some vestibular and propreoceptive sensory feedback! It also had a nice array of comfy seats for the adults, not that we got to use them!

Impressions

Moonfleet Manor remains a beautiful place to go. The amount of facilities available to all ages are more than you’d find at most other holiday resorts let alone other hotels and I’m so glad we went. Oscar’s issues with the dining room did make me realise how differently we manage food and it’s consumption at home. I came away feeling like self catering would have been much easier. For him and for us in terms of his behaviour. However, he’s since started school and is slowly learning to eat in a room with lots of others, which makes me think actually this wouldn’t be an issue again. But if it is for you I would highly recommend the room service option!

The staff couldn’t have been more friendly or helpful. Not once were ever made to feel we were any different to any other family. When, during his first session in the creche, Oscar needed a change of clothes. The hotel manager came to find us and once we’d grabbed the clothes insisted he take them over himself so we could resume our sitting/schlomping in the chairs by the window! A gesture that was most appreciated. Those two hours sure do fly by!

All the facilities aside, my favourite thing about Moonfleet Manor is it’s location. The views from the hotel and gardens down to the Fleet and Chesil Beach were just what I needed after a very stressful summer. Peaceful and calming, they breathed new life into all of us as a family.

The field of horses next to the garden were a great hit with Oscar!

Just like when we visited with a toddler, we came to Moonfleet Manor with our autistic son, looking for a chance to rest. We did just that.

A beautiful day begins at Moonfleet Manor.

We would like to thank Moonfleet Manor for supporting us on our visit to their hotel. We paid for our room and treatments ourselves, however were gifted a complimentary room upgrade for this review.

As always all opinions are honest and my own.

You can find out more about Moonfleet Manor and the Luxury Family Hotel chain on their websites.

When Summer isn’t all about making memories

05/09/2016 by MrsSavageAngel Leave a Comment

The consensus across the sentiments I see expressed on social media, is that parents have spent a lot of energy this summer, relishing the time they have with their children, and working really hard to make it as special as they can, so that they never look back and say they wasted these young days. That when these days are over they will miss the chaos and the muddy knees and the laughing and trips to the beach. And I don’t doubt it. But while you may have adored the summer holidays, being with your children and making wonderful memories, for me eight weeks without barely a break has been too long.

And that makes me insanely jealous.

Our summer holidays started well. Oscar began happily enough. I loved not having to get up and dressed in time to walk the miles a day to take him to preschool. It was enough. But within a few weeks the iPad had taken over our lives and try as I might to set up activities at home, mostly I felt like I was whistling in the wind. I had to take him out of the house, to the park, or to the shops on errands, just in order to get him away from the screen. Cause when he falls into the vortex that is Youtube Kids, I may as well not exist.

It’s my fault of course. I gave him the damn thing in the first place. Downloaded the stupid app in an attempt to stop him googling pictures of trains, which would lead to videos of trains on real Youtube, which lead to videos that weren’t wholly (or sometime at all) appropriate. I can’t blame anyone but myself.

But unlike last year where he spent a large portion of the summer hols watching Team Umizoomi on TV, which seemed to improve his language no end, this summer, his language seems to have stalled. And in the last few weeks the echolalia is back; repeating scenes from YouTube videos over and over. He hasn’t done that for so long. At least he now brings me into his script, teaching me what to say and when. For example:

Oscar comes over to Mummy: “Mummy (say) Oscar, what you talking about?”

Mummy: What are you talking about Oscar?

Oscar: It’s a ghghghghost train drive here last night

Mummy: Where?

Oscar: Last night (something I cant quite make out) made my wheels wobble

Mummy: You are a silly engine, I’m not afraid of ghosts

Over. And Over. And Over.

A friend with older autistic children has suggested this could be his attempt to make order out of the chaos. That for him, not going regularly to preschool (his established routine) is starting to make him anxious. It could be. I thought we were doing OK, but his behaviour has started to suggest he’s not doing quite so great. No full on melt downs yet, but lots of resistance to doing anything. And an obsession with anything Thomas related. He’s always been a fan but this summer he’s taken that to another level. Again, I’m assuming it’s familiarity in an unfamiliar routine. An attempt to make sense of our world.

We have had a few nice days. We went on our Day out with Thomas, he’s been to Challengers twice (which he loved – I hear. He never tells me of course), we’ve had the paddling pool in the garden and sojourns to the swings. But there have been no day trips out out. Because I don’t drive if it’s not on a train or a bus I can’t do it. But even if it was on a train line, the thought of taking him ‘out out’ alone scares me. We have been to our local children’s centre a few times this summer, which has been mostly lovely (although it’s hardly LegoLand right?!) Anyway one day he had a good time but started to get stressed towards the end and I knew it was time to go. We went to the toilet before we left, when he started to cry and fight me. I had a banging headache that day and I ended up sat on the floor of the loos, trying to hold the tears in, just completely unsure of how I was literally going to get him home. Because everywhere we go is under my own steam and I seriously wasn’t sure I had any left.

I did get him home (he calmed down as soon as we left), but that’s how I feel this summer has left us both. With little resources left. Somewhat frayed at the edges.

I’m not sure this is the best frame of mind to start school is it? Surely it would be better to be rested and raring to go. But I’m pretty sure that’s not how he feels. At a guess I’d say stressed, bored, lonely even. Probably sick of my face. I’m hoping our short break to Moonfleet Manor next week is a good idea. He’ll have so much to do and lots of new things to play with. I doubt he’ll remember our last visit so I’m making him a visual reminder. But I am hopeful that we’ll all come back a bit more…. if not rested, then more ourselves.

Because this summer has left me like my Woody and Florence AUTISMMAMA bracelet.

Worn thin and ready to break.